PANS/PANDAS UK Charity
PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.
One estimate suggests that up to 1 in 200 children suffer from this condition.
The website includes:
- resources for parents including diagnostic criteria and details of local support groups
- resources for medical professionals
- resources for teachers and schools
- teacher training package
- Facebook group for parents/caregivers
- Facebook group for young people aged 12-17 with the condition
- Facebook group for adults
- links to further research
- advocacy and support from the charity