Syndromes Without A Name (SWAN UK) Genetic Alliance
SWAN UK (Syndromes Without A Name) is a project run by Genetic Alliance UK specifically for families of children with special needs who do not have a specific diagnosis. Offering information and support to families, the project offers a friendly listening ear whilst also seeking to raise awareness of what life is like with an undiagnosed genetic condition.
If you or someone you know is raising a child with an undiagnosed condition please encourage them to get in touch to see how the project can support them.
SWAN UK has 3 specified project aims:
- develop a community of families with undiagnosed genetic conditions for mutual support and information sharing;
- develop a network of health and social care professionals with expertise in undiagnosed conditions; and
- increase awareness and understanding of undiagnosed genetic conditions.
Visit the website for details.
