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Ehlers-Danlos Support UK

Ehlers-Danlos Support UK (EDS UK) is a charity dedicated to providing support, raising awareness and improving the quality of life for people living with the Ehlers-Danlos Syndromes. The Ehlers-Danlos Syndromes (EDS) are a group of thirteen individual genetic conditions, all of which affect the body’s…

Love to Learn

Love to Learn offers support and advocacy to families with children and young people from refugee backgrounds. They are working towards a future in which all young people fulfil their educational potential and do well, feel confident and enjoy learning. Services include: Homework…

Personal Independence Payment (PIP)

Personal Independence Payment (PIP) started to replace Disability Living Allowance (DLA) from 8th April 2013 for people aged 16 to 64 with a health condition or disability. To qualify for PIP you must have a long-term health condition or disability and…

Disability Grants Website

A grant is a financial donation or contribution. Unlike loans they do not have to be repaid. Many UK charities or trusts provide grants for the disabled, each with their own criteria for providing funds. This website is for families of disabled children,…

National Autistic Society

This is the leading UK charity for people with autism (including Asperger syndrome) and their families.  The charity offers: information; and support. Visit the website for more details.

The Children’s Trust

The Children’s Trust is a leading charity for children with brain injury. The Trust works with children and young people from across the UK, both from their specialist centre in Tadworth, Surrey and in communities around the country. 

YoungSibs

YoungSibs website for the brothers and sisters of disabled children. It is part of the Sibs website. Sibs is the UK charity for people who grow up with a disabled brother or sister. YoungSibs has information, help and a chat…

Disabled Parents Helpline

Disabled Parents Network (DPN) is a national organisation of and for disabled people who are parents or who hope to become parents, and their families, friends and supporters. DPN is run by volunteers, with a small number of paid employees. DPN…

Scope’s Online Community

Scope’s online community is a place for disabled people, parents and carers to share experiences and swap practical information. The community offers a unique tips section, with hundreds of practical suggestions from people with first-hand experience of disability. 

Syndromes Without A Name (SWAN UK)

SWAN UK (Syndromes Without A Name) is a project run by Genetic Alliance UK specifically for families of children with special needs who do not have a specific diagnosis. Offering information and support to families, the project offers a friendly listening ear whilst…