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PANS/PANDAS UK Charity

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strepare devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.  

One estimate suggests that up to 1 in 200 children suffer from this condition. 

The website includes:

  • resources for parents including diagnostic criteria and details of local support groups
  • resources for medical professionals
  • resources for teachers and schools
  • teacher training package
  • Facebook group for parents/caregivers
  • Facebook group for young people aged 12-17 with the condition
  • Facebook group for adults
  • links to further research
  • advocacy and support from the charity

Who to contact

Contact Name
Vicky Burford
Contact Position
Secretary
E-mail
vicky.burford@panspandasuk.org
Website
www.panspandasuk.org
Notes

Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions.  Affected children can be in mainstream, alternative, specialist provision or electively home educated.

Where to go

Notes

All of Wandsworth covered.  We provide support via our Facebook group PANS PANDAS UK.

Time / Date Details

When is it on
24/7
Time of day
Evening
Afternoon
Morning
Session Information
Please join the Facebook group PANS PANDAS UK
where you can obtain further support as and when needed.

Costs

Details
Free at point of access, supported through the PANS/PANDAS UK Charity.

Availability

Referral required
No
Referral Details

Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.

 

https://www.panspandasuk.org/for-educators

 

Last updated: 15 Jun 2022